Blastocysts Update

I thought I'd give you all a general update and total history of my Blasto.

I was tested around January this year for Blasto and it came back positive, I was treated with Flagyl, the normal antibiotic that is given when Blasto is detected. This was my second dose as I had already had one dose about November last year as the doctors had no idea what was wrong but thought they would just give it to me in case. I was never re-tested for Blasto until about July when I went to a Naturopath.

After being tested at the Naturopath and it coming back positive again we had the option to go to my GP and get treated or have herbs from the Naturopath. Mum chose the GP option and I was given a double dose of Flagyl this time. This time and the previous 2 times I never had any side affects and these tablets did nothing. Mum asked for me to be re-tested after finishing the Flagyl and again it came back positive.

My mum then found a clinic in Sydney who have successfully treated Blasto before. She spoke to a lady from their who gave us the name of a doctor in Brisbane. Mum tracked that doctor down and I went to see him. He gave me a script for the Centre for Digestive Disease first protocol and I started them.

These tablets made me so very sick, I was nauseas, I had achey bones, my stomach pains were terrible and I was just so sick. I had 2 weeks off school and finished that course. This was August.

I then waited the required 4 weeks and was re-tested, I found out in the last week of term 3, in the middle of exams that I was still positive.

After finishing this first set of tablets I felt so much better, I could eat some foods containing gluten that I wouldn't have been able to before, day to day my pains were a little better and overall I felt a little better however my pains were still there and I could not continue to live like that.

I then started the second protocol from the Centre for Digestive Diseases in the school holidays thinking they too would make me terribly sick. They did not have any effect on me until I had finished them. We think this is because I started this lot of tablets a lot healthier than I did the first time. My nausea severely increased and still has not gone back to the normal amount I have and I felt really tired. I still have not fully recovered to how I was feeling before this second set of tablets however Im feeling pretty good.

I sent away the sample to be re-tested yesterday and should get the results back this week. If I'm still positive I have an appointment with a doctor in Sydney in January to discuss further treatments and if it's negative I'll be re-tested to make sure it is not a false negative.

And that is my little journey with Blastocysts, if you have any questions please leave me a comment.

Charlotte;)

Last day

Today is the last day of holidays:( and the last day of my Blastocysts tablets:)

This term, term 4 is only 8 weeks long!! But in this term I have 2 English assignments; one written and one oal, 1 student free day, an awards night, 1 year of being sick, graduation for the year 12's which means a very long mass (I missed the one last year but I have been told its sad and boring), 2 Home Ec assignments; one practical and one written, a computers exam, an English exam, Science exam, Social Science exam, Maths exam, Religion exam and a Business exam. I will be busy, stressed, possibly definitely overwhelmed but I know I  can do it, I know I will get through it and I know I can do it well. I want to wish myself and all other students out there all the best of luck for the last term of this year. All I have to do is think of the lovely looong holidays after this year is finished and soon enough I'll be in year 10!!

Today is also the last day I'm on the second set of tablets to treat my Blasto. These have been nowhere near as bad as the last lot but I have had increased nausea and 1 other side effect. Today and yesterday have definitely been the worst day so far but even they have not been that bad. I'll get re-tested in 4 weeks and if it comes back positive there is another set of tablets or some type of drugs to take again. I have an appointment with a doctor in Sydney at the Centre for Digestive Diseases in January which was the earliest I could get in and if I still have Balsto. by then we will go and see him. Hopefully all goes well but I'll keep you all updated.

Charlotte;)    

The results are...

I got re-tested for Blastocysts last Friday and got the results back today (well actually I should have gotten them back yesterday but we weren't home and our cleaning lady answered the phone and mum had to ring back today).

I tested......POSITIVE for Blasto. After 10 gruelling days of 3 different antibiotics and feeling sicker than I ever have before I've still got it. So all of that was for nothing!!

I'm not upset yet, I still have a science exam tomorrow and I'm totally focused on that. I haven't thought about the results or felt anything about them. I don't want to talk about it until my exams are over and then maybe (definitely) I'll be upset.

I don't know what is going to happen next, I don't know if I'll have the tablets again or if I'll have another set. I don't want to yet because that will be all I would think about and then possibly go bad on my exams!!

I'll  post again after this term is over tomorrow!!!

Mish Mash

It's spring!! Winters is over, YAY!! Finally we might get some warmer weather!!

Yesterday I walked into a desk and now I have a MASSIVE bump and bruise on my leg. I hardly even touched the desk and now it's to sore to touch!!

After lunch today I had to come home because my stomach was extremely sore. I would have come home earlier but I had my English exam. My stomach is still quite painful but my heat pack seems to be working well.

I'm starting to get some summer clothes for the cruise I'm going on in December!! I'm so excited and I can't wait!! Hopefully I'l be all better by then and be able to enjoy it a lot!!

This weekend I'm have nothing planned but studying and assignment work!! How fun?? I can't wait for the holidays, don't get me wrong I like school and I'm sorta good at it but holidays are 100 times better than school!!

Next Thursday I'm getting re-tested for Blasto since it will be four weeks since I finished the tablets. I'm kinda nervous, kinda excited and I'm not really thinking about it cause I have so so so many other thinhs going on at the moment.

I hope everyone is having a good week and I'm counting down the hours until the weekend!!

Charlotte;)

Tests tests tests and more tests

So far I have had:
2 Endoscopy's
1 Colonoscopy
2 Ultrasounds
1 CT scan
What seems like 1657 blood tests
564 Urine and feaces tests

All tests have come back clear expect for one endoscopy showing villi damage, one feaces test showing pin worms and all of the blood tests have come back showing that the message from my brain to my thyroid in my neck is non existent but there is normal levels of thyroxine in my body. Oh and there is something wrong with my liver and I cannot digest proteins properly.

Is there anyone who has anything like this and has had a helpful test that maybe I should have had??
Is there anything anyone can recommend to me that may help??
Anything at all would be helpful!!

Charlotte;)